Experiences in parenting a child with autism

Sometimes, I wish parenting was like any other profession. If it got too difficult, you could take time off, complain to management or even resign. At the very least wrangle yourself a pay rise.

As parents we always strive to do the best for our children. We work hard to try and provide for them, guide them when they need guidance, comfort them when they need comforting and give them the benefit of our wisdom and knowledge at just the right time. We also know that for the main it will all be ignored and they will still make their own mistakes. Nevertheless normal expectations prevail, that is they will talk and walk at a certain age, play, make friends, eventually form relationships and so on. However, when you have a child diagnosed with a ‘disability’ in my case autism, things are different. Of course all the desires and hopes are the same as with any other child but the reality is often very different.

When your child is diagnosed with a disability, the initial reaction of many parents is denial often followed by confusion, anger, a grieving process and a myriad of other emotions. The journey at the beginning may seem overwhelming and disheartening and for the main quite an accurate assumption. The quagmire of bureaucratic hoops and somersaults one must perform in order to get the help needed is confusing and incomprehensible to most of us. Mind you the system that you are constantly up against is the same one set up to help you. Often overlooked is the financial cost associated with having a child with a disability. Many times one parent may need to cut their work hours or stop work altogether. That is if you are fortunate to have both parents together, as another aspect often overlooked is the toll it takes on relationships and family break downs.

Different challenges arise throughout the different stages of your child

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Challenging behaviours in children with autism

Every behaviour serves a purpose. Learnt behaviour whether positive or negative brings its own rewards. For children with autism, difficulties in communicating and interacting with others, sensory issues or wanting something without having to wait may result in them reacting negatively within their immediate environment. When these reactions pose a risk to the individual or other people, it becomes very challenging for carers and families. It is crucial to emphasise that not all children with autism display challenging behaviours!

Possible causes of challenging behaviours:

1.

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The big A…….

Throughout my career as an early childhood and special education teacher, I had the pleasure of teaching many children with additional needs. Whether it was planned or fate, I specialised in children with autism. Somehow working with these children never failed to fascinate and surprise me. I say fate because at the age of four my own son was diagnosed with ASD.

At age two, there was nothing he enjoyed more than visiting me at work to be around other children. He seemed to be developing normally, in fact I was impressed by his early language acquisition and overjoyed when he started walking at 11 months. Life was good and things were going to plan.

Things however slowly started to unravel and I noticed some worrying signs. Tantrums were more frequent and intense without any real apparent triggers. He stopped playing, food that he previously enjoyed made him gag, and his anxiety levels went through the roof. Just going grocery shopping, an excursion previously loved, became impossible. Even watching movies became an ordeal as he would insist on watching certain scenes over and over again, as if to torment us further he would watch them in slow motion. He no longer enjoyed going to child care, and when he did go he would ignore the other children around him.

Perhaps because of my profession and experience, I had realised quite early on that these were the tell tale signs of ASD. I delicately tried to prepare my husband for what was to come, however, the official diagnosis was a sad day that shattered him nonetheless. As any family with a child with autism will tell you, life is really like you’re on a roller coaster. There’s good days and bad but they’re always exhilarating.

Very early on in the piece I was given a little gem of advise. Basically it was to

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Teaching play to children with Autism Spectrum Disorder

All children benefit from playing as it is a great vehicle for learning important developmental skills. It allows them to practice and gain new knowledge and

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